1.800.597.1183 info@altruaministries.org

Firefly Fund

“Firefly Fund is a global leader in providing support, resources, and reassurance to families living with rare neurodegenerative genetic diseases like Niemann-Pick Disease Type C that affect children and currently have no cure. Headquartered  in Austin, Texas, Firefly Fund works directly with researchers, physicians, and patients through its three main initiatives: Newborn Screening, Translational Medical Research, and the Patient Access Fund. A rare disease diagnosis is unimaginable, but together we will find a cure. For more information or to donate, visit www.fireflyfund.org.”